Guest Blog: Foot care, diabetic #neuropathy

Family Feet

One of our Closed groups on the Social Media platform of Facebook is called ‘Diabetes Education and Management’. This group is supported by Diabetes Educators and a Midwife, a Dietitian, and a Pharmacist, as well as Mental Health Counsellors.

Recently one of our Diabetes Educators posted a link to a blog about complications and Foot Care in diabetes management, a fairly regular topic of discussion. Footcare form edited July 09

A very heartfelt and powerful response came from a member of the group, Zac. Zac has very strong views on the importance of seeking truth, accurate information, and developing informed knowledge about foot care and diabetic neuropathy in particular. He warns about the high risks associated with poor diabetic control, and not being proactive in our own health care, risks that he believes were not made clear to him before it was too late. Here are Zac’s powerful words:

This topic is very interesting to me, being a Diabetic T2 for a few years now. I visit my Clinic only once a year. They make my appointments, not me. BUT I just wish I had’ve been told about the seriousness of COMPLICATIONS of Diabetes as so far as Peripheral Neuropathy is concerned, as I now have it.

Not once was I referred to a Podiatrist, so I asked to make an appointment, only to be told they are not taking any more patients as they are over loaded. Well, I didn’t bother too much about it at the time, as I didn’t have Peripheral Neuropathy, and thought nothing of it. Until, that is, for another 2 yrs. By then, my feet felt like they were in a bucket of bull ants.

Not realising this was nerve damage, I put up with it, until, on one of my visits to my Clinic the nurse did a small test on my feet. She looked at them and said, “Oh, your feet are fine.” So I asked, “What would be making my feet feel like they are being bitten by bull ants?” She looked at them again, said she didn’t know, and again, said she thought my feet were fine, so home I went, feeling disappointed.

On the next visit, I demanded. I said, “Something is SERIOUSLY WRONG with my feet, please help me.” So the nurse called in some guy, whom I wasn’t introduced to, and he put a name to it, called it ‘Peripheral Neuropathy’. Well, I was just over the moon that someone had finally worked out what was wrong with them!

But then he said, “Go to your chemist buy some Phanalgon Cream. This helps some people.” my reply was, “But I want something that will definitely help my feet!”

He said, “There is no cure for Peripheral Neuropathy.”

So I said, “You’re kidding me, in this day and age there is no cure for it?”

He said, “Yes, no cure.”

So home I went, with Phanalgon Cream in hand, only to have a bad reaction to it. My skin started to peel off from my feet, as it has chilli in it. So I tried again when my feet healed, but used less of the cream. Still I had a reaction to it, so I gave that the flick…..

I’m ANGRY at myself. First of all, for being so flippant about Diabetes; and not educating myself about complications which I never knew existed. And I’m ANGRY at my Clinic for not pointing these matters out to me in the first place. After all, isn’t this why we attend clinics? When the nurse used to test my feet, I was never given an explanation as to why. It’s the same with my eye tests. I was never told that Diabetes can affect your eyes. I just thought it was a normal eye test…Sorry this is long winded but if I can help just ONE person to realise the seriousness of Diabetes Complications then it will have been worth while typing all of this.

I just wish I had been warned. Peripheral Neuropathy is the pits, and I don’t have a normal life now. I am practically house bound because of it…..If you have read this far I Thank You and I Thank you David Mapletoft and Sally Marchini and for everything I have learned through your expertise and knowledge, even though it’s too late. Well, not too late as far as Diet is concerned, but it’s too late for my suffering feet. Thank you Zac

Zac has kindly shared his experience here. Do you have a similar experience? Can you give Zac any suggestions on how to manage his foot discomfort and pain?

 

Helen Wilde

Senior Counsellor

Helen has been a Counsellor with the service since 2003. She has been the parent of someone living with Type 1 diabetes since 1979, and has lived with type 2 diabetes herself since 2001.

 

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Guest Blog:Thanks Teacher

Our guest poet, Maureen Campey, has written another great poem about Parenting a child with diabetes. This time, Maureen has written about her teenage son starting a new year of High School, one of those momentous hurdles that we all face as parents.

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Here are Maureen’s wise words.

Sending our kids back to school always brings its own set of worries and frustrations. My T1 14yr old has gone back to a new set of teachers. He seems pretty cool with it all. My ‘coping mechanism’ seems to have become, Writing Poetry! Weird, I know but it helps me get it out of my system. I hope you don’t mind if I share!

Dear Teacher

Hi, hello, it’s me again.
Please don’t roll your eyes!
I’m not a helicopter parent,
I come in peace!

I need to explain
That my child will be carrying an invisible pancreas.
You won’t even know it’s there.
He will carry it with him wherever he goes.
He will do its job and look after it
But sometimes he may grow a little weary.
Your help may be needed as he mustn’t let go of this tiresome load.

Scared? Don’t be!
Imagine how he feels all day, every day
Yet he keeps on going.
Your job is small and help is at hand for you.

My child must calculate many things at the same time.
He must think like a pancreas.
Can you imagine?
As well as trying to learn,
He must anticipate the effect of every action and piece of food
Whilst travelling from class to class, and teacher to teacher.
No mean feat!

I will make sure you are given the knowledge you need.
I ask that you are willing to accept your role.
Let him be and don’t become a helicopter teacher.
He is not perfect.
Do not expect gratitude,
There will be no immediate reward for what you do
But know that he will go on to live a full life
Having learnt from you that this burden can be shared.

You will never know the gift you have given my child
But please know that I will be forever in your debt.

Maureen Campey

giving love
The gift of the Future..
 

 

 

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Life..’More than #diabetes’ Ups & Downs

Flowering Wattle

How much does diabetes dominate your life? It is a health condition which, because it is related to food and exercise, can seem like the most difficult health condition you could possibly have, doesn’t it? And because the symptoms are not always obvious or noticeable, it can seem that if you ignore it, it will just go away, or not be true.That you will ‘get away with it’, if you ignore it, or make a ‘token effort’. Even people with type 1 diabetes can at times feel that they can ‘stretch’ the ‘rules’, not take their insulin, or use insulin to allow themselves to ‘indulge’ in ‘favourite’ foods; or ‘allow’ themselves to ‘run high’ to avoid hypos. The insulin pump combined with the modern blood glucose meters, cgm’s, allows such fine control, approximates more closely than anything else the action of the pancreas in releasing insulin; yet in its very existence such biotechnology is a constant reminder of life with diabetes.

As the parent of a child diagnosed with type 1 diabetes, there were times when it seemed there would never be anything else that mattered in life, other than diabetes. When my daughter grew up & left our home in a tiny rural town to go to the City to study at University, things in some ways got easier; but in other ways, things got harder. I was a young Mum, and I was only 32 years old when my beautiful healthy girl was diagnosed. I was 37 when she left home. It was hard knowing she was 250 km away, and relying on others, who were not me, as her ‘backup’ person. Every night that we slept under the same roof, I got up to sit with her through her hypos. The click of a light switch, or the click of the toaster, would wake me. This continued through her teen years; her pregnancies; her own years mothering babies; travelling with her for Diabetes related professional reasons as colleague, & as her ‘back up person’ for her diabetes management, on trips overseas & interstate ; and on family holidays. Even now, if we are sleeping under the same roof, if I’m sleeping within hearing distance, something wakes me, and I can’t lie in bed knowing she’s out of bed & feeling bad.

I do have other things in my life: work, sport, friends, family: causes to do with the environment and the earth. I have grown tree seedlings for Trees for Life, collected for the Heart foundation, travelled. I’ve volunteered at Film Festivals, Arts Festivals, tutored at the U3A. But beating away like another heartbeat is my daughter’s diabetes. I work and volunteer in Diabetes. I practice Mindfulness. Being her parent will always be a part of who I am. Of course, it is much, much more intense for her. Every minute of every day and night, no respite. I do get to take breaks, she doesn’t.

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My life changed 15 years ago. My husband retired, and I got a job in the city, so we moved house. Over the past 15 years, my life has expanded to include assisting my mother in dealing with changes that came about in her life, first with my father’s diagnosis of dementia. In the beginning, I was working in a highly responsible & challenging job. My help was as practical as I could manage, also fitting in supporting both my daughters with pregnancies & babies, toddlers & growing children. With my father’s death, assisting Mum meant helping her manage her own health & living arrangements, & eventually her own dementia.

That time also came to include my own diagnosis of diabetes. Because of my daughter’s diabetes, I came to the diagnosis with a shorter period of ‘denial’ than some experience; and with very little anger. I do feel some negative emotions, of course; but I know that it’s possible to live a good life with diabetes. My fear of diabetes related complications is much less than my fear of dementia.

I hadn’t meant to write about difficult experiences in my life, but yes: they are also part of life, and many of them have nothing to do with diabetes. The past 15 years have included weddings, births, joys: wonderful family Christmases, when Mum played ‘Mother Christmas’ to our large family: visits from overseas relatives, contact through Social media with relatives, friends, strangers. Yes food is pleasure, but there are other pleasures. Exercise is pleasure. Doing things for others is pleasure. Growing things, writing, taking photos, playing with children, doing good work, talking with friends from all over the world, these are all pleasurable.

Life is Good. Life is a river, it flows. Life is truly a journey, with opportunities for rich experiences that include the difficult ones, and the easy ones: spontaneous ones and planned ones. Seize the moment, take opportunities when they arise. Life is more than diabetes: it includes things that are harder, and worse: and things that are easier, & better..Life is for the Living.

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Helen Wilde

carpe diem

Helen is a Senior Counsellor with Diabetes Counselling Online. She is also the parent of someone diagnosed with diabetes in 1979. She has lived with type 2 diabetes herself since 2002.

 

 

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How #diabetes changed me for the better, Georgia’s blog

So, I totally forgot on Friday until Mum reminded me that it had been 6 years since I got diagnosed with Type 1 Diabetes. I can’t believe it has been that long already. It has been a big journey, with some ups and downs but many positives.

I did a standard Facebook status honouring my D Day which read:

“Six years ago today I got diagnosed with Type 1 Diabetes, I can still remember the exact emotions running through my mind on that night.”

I just want to thank everyone who has been there for me, they know who they are. Those who have come on ‘Walk to Cure’s’, donated, helped raise awareness, those who have asked questions and wanted to get a better understanding of it all and those who have been through it and can relate.

Mostly I want to thank my parents who have made everything easier; I honestly don’t know what I would do without them or where I would be. They have been my angels who have helped me believe I could do anything and that nothing (especially this) could stop me from living out my dreams. I have travelled to destinations I have dreamed of, been on a Safari tour and went White Water Rafting in South Africa. So as my favourite role model Audrey Hepburn says, “Nothing is impossible, the word itself says ‘I’m possible’!”

I’m not one to post the details of my private life often, but at that moment, I was proud.

Proud of how I have accepted this change, proud of how I have dealt with everything and proud of the person I am today. And although there are times I wish I never had this, I know I wouldn’t be the type of person I am today – someone I am proud of.

I’m the type of person who when told ‘you can’t’ it makes me want to do whatever that is even more. My mum was worried sick when Dad and I went to South Africa and if you read my blog posts from that trip she had very good reason to be. She knew I was in safe hands, but having diabetes does require control and preparation.

My dad is a builder and he is currently renovating our river property. I was admiring all the work that has gone into it, it’s been thought out and executed with precision and I was amazed. My dad said ‘with building you always need to be a step ahead’. I guess it is the same with Diabetes. Like our trip to Africa required a lot of background planning, checking up on places because I am Gluten Free too, and packing enough supplies to make sure our backup had backup for those ‘just in case’ emergencies.

Diabetes is a daily job. Before I start my day I check my blood sugar levels which determines the sort of ‘diabetes’ day I am going to have. It determines what I can have for breakfast and so on. It’s all about planning ahead, and I am proud of every person out there living with diabetes, because it isn’t always easy, but you make it work and have to live your life how you want to. Just like building a house you design it to your needs.

Diabetes has for sure changed me, the way I view the world and what I want out of life. I was highly ambitions before, I guess I always have been but now I have the confidence to go with it. I’ve learnt nothing is certain and you have to go for what you want, because before you know it the moment passes and you’re left drawing up another blueprint.

Although I have been on many planes, and many trips, this weekend I am going to Melbourne for the first time with a friend, without my parents. Although I organised all the airfares in Africa this is different. This is a big independent step for me and I am really excited. Of course, I am going with a great friend who has been one that has always been there for me, so I have no worries at all.

I will be sure to let you know how the trip went, hopefully no dramas, just some funny memories.

Until next time,

The daughter of a builder – Georgia

georgia

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#shortcuts or the #longwayround? Which is best? Making decisions & weighing up #choices

Morialta Gorge butterfly

Yesterday I had an appointment at the Dentist. Groan. Yes, it was just a checkup & clean, but I did end up with a new filling as well. My dental appointment had been delayed by about 6 weeks, due to a month long virus that had also resulted in the cancelling of appointments with my optometrist, chiropractor, my flu shot, my mammogram, and my podiatrist. I’m still catching up! So it’s been a bit of a marathon of the rounds of all my health checks, most of which are diabetes related. But all (most) is well, my HbA1c results are good, as was my random bgl fasting test & my urine tests for kidney health, my feet are doing well, my eyes are unchanged. My blood pressure was up on the day I finally got my flu shot, maybe I’ll have to change medication for that. Sigh. My chiropractor has previously worked miracles on my back, shoulders, hips and is now focussed on my knees. I know I need his help to keep mobile for the sake of my diabetes management as well as heart, lungs etc. My dentist is also important in terms of my oral health, as being able to eat & enjoy the fibrous & ‘healthy’ foods also helps my diabetes management.

Largely because I have diabetes, this is a never ending journey of health checks. I feel fortunate to live in Australia with its great universal healthcare system and affordable health insurance, compared to some countries. I do feel sometimes as though I’ve been going ‘the long way round’ to arrive back where I was before all these checkups. It all seems so hard to fit in, & I’m not always motivated nor sure that my results will be positive. I know I’m lucky: some people are following up these same health care checks and getting not so good news. Sometimes it’s tempting to delay or postpone or ignore the need for getting tests done. It all gets so complicated, fitting appointments into our regular life. It’s tempting to take the ‘short cut’ & ignore it all, relying on the bgl meter & how we ‘feel’. Sometimes we’re scared of getting ‘bad news’. But at the same time we know that by getting the tests it means that we can get proper advice, and at least know the best path to take to improve or maintain our health.

So in the afternoon, feeling fine after my filling, I decided to take some exercise. Normally that’s a walk in my suburban neighbourhood, which does have some pleasant options & is something I can do easily, as everywhere I go is relatively flat. I can also do some local shopping, with all staple needs & some luxury items being walkable, even the post office & my pharmacy are walkable. Some days I will do several short walks. Yesterday was another glorious warm day in Adelaide, & I decided to pop up to the local Conservation Park, at Morialta.

I parked my car under some tall gum trees, & hopped out. Usually I walk on the flat, a slow steady imperceptible incline takes me on a delightful walk, crossing the creek several times, then to the waterfall at the end. Usually I see lots of birds, butterflies, and koalas.

Morialta Gorge butterfly
Golden Monarch

Most of the time I am out of mobile phone range, because of the walls of the Gorge, which is quite nice. My husband often tags along, but he climbs, heading for the Tops & walking a circular route around the ridges, crossing over the waterfall at the top, and meeting me back at the car. Yesterday he was feeling a little unwell, so I was alone.

As I hopped out of the car, ready to walk down to the creek trail, I glanced over my shoulder. I saw the beginning of the track my husband usually takes. I used to walk that track with him, but now I am too slow to keep up. I thought, ‘Oh, I might just walk partway up Hogan’s Track today’. So I started. The track is wide, & has been improved since I last walked it, but it’s still a physically demanding trail. The slope is quite steep in parts, and the sunny afternoon made me hot very quickly. I was intending to go partway, then head back for my usual flat walk. Somehow I just kept finding the motivation to keep going, with frequent stops, until I found myself at the top of the ridge. Here there are several options. I could head straight back down the broad track I had just come up. I could go to one of two lookouts. I could head up higher, to the next ridge, which provides good views of the city. I looked at the sky, and at the time on my mobile phone. I had about 30-45 minutes until the sun set. I knew I did not want to be heading down in the dark. So I took an option which was not the shortest, but which was manageable in the conditions and in the time frame. I headed along another ridge for Hogan’s Lookout, and a mad scramble down a ‘shortcut’, which would shave off about 300 metres of climbing, but I knew would be a more challenging descent. As I took the path leading to the lookout, I heard a soft grunt & a rustle. I felt a little surge of fear, you never know what creature might be about, and I’d seen no humans on my ascent. I looked off the narrow path, and there was a large echidna! Poor thing was clearly more afraid than I, and was trying to bury herself, face first, all fluffed up with her spines. I took a photo, spoke to her quietly, & headed on to the Lookout.

Hogan's Lookout trail
Echidna

As I neared the Lookout, I could see there was a great view, and the sun was starting to head to the horizon.

HHogan's Lookout

Another decision: which way down? I could retrace the Lookout trail, & head back down the wide track I’d come up. Or I could take the scramble trail, much steeper & narrower: shorter by about 300 meters, but would probably take longer, as I would need to be more cautious. I found the start of the trail, not easy, as it is infrequently travelled and the start is steep and somewhat overgrown. I could see the track of a bicycle, muddy wheeltracks. I thought, if someone has recently gone down on a bicycle, I should be able to make it on foot. So over the edge I plunged.

I was rewarded with great views, birds, butterflies, & an ankle & knee threatening descent. The sun was going down, & the level of difficulty was every bit as challenging as I’d thought it would be. There were so many traverses of this steep descent that I lost count. The rains had gouged out little gullies in the centre of the narrow track, which of course was littered with stones & rocks. Most of the way I had fantastic views, into the Gorge & over the plains, with the low sun casting long shadows, with Adelaide spread out before me. There were feral olive trees scattered amongst the eucalypts, & animal droppings indicating wallabies or kangaroos. I started to worry about how long it was taking, but then I recognised that I was almost on the final traverse, & popped around a corner to glimpse my own car, parked below me amongst trees.

Home stretch
Home stretch

By this time I was covered in a fine film of sweat. My knees were somewhat tender, but they always are, even if all I do is sit. I’m pretty sure that the exercise endorphins & the mindfulness practice were kicking in, because what I felt was elation. I’d challenged myself, both physically & mentally. I’d made good decisions. I’d achieved something that I’d though was no longer possible for me to do. I reached the last little slippery slope, popped back down onto the road, crossed over & followed the creek back to the car. As the sun set, I drove slowly home, feeling quietly happy, and very blessed. I had done something that I thought might be too hard, but by thinking & strategising I’d achieved it.

Helen Wilde

Helen is a Senior Counsellor with Diabetes Counselling Online. She has been the parent of someone with Type 1 diabetes since 1979, and has lived with type 2 diabetes herself since 2001.

 

Diabetes can't stop me!
Diabetes can’t stop me!

 

 

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