Keeping still: scarcely breathing: & hanging on

Last weekend I was tired. I didn’t turn my computer on from Friday afternoon until Monday afternoon.

I visited Mum in the Nursing Home on Friday afternoon, & had dinner with my sister on Friday night, & we made a YouTube video for ‘Dine In’. On Saturday I had Brunch with my 4 sisters, always a lovely, laughing, chatty time: even better because we went to my lovely nephew’s cafe.. I had a Dr’s appointment Monday morning + the plumber came Monday & Tuesday, & on Wednesday morning I had fasting blood tests at the IMVS. We babysit Tuesdays & Wednesdays every week. In between I worked.

On Thursday I went back to bed after breakfast. This is something I almost never do. I usually have an obligation to someone to motivate me to get ready for the day & move into it. I was feeling really tired, almost exhausted. We have had such horrible weather events lately, & I have been as busy as I usually am, or even busier.

After I had stayed there for about 20 minutes, not sleeping, I recognised the state of almost trance that I was moving into. I call it my ‘nearly dead’ state of being. My first memory of entering this state was when I was a child. I have 4 sisters, two of them came along by the time I was 3 years old. So my life has never been solitary. When I was 10, sister 3 came along, & at 14, sister 4. By then we lived in quite a large house. But before I was 10 years old, my first 2 sisters & I always shared a room. The last of these rooms was tiny, so small that our 3 beds touched each other. Being in the days before TV & computers or the Internet, our playtime was rich with activity & imagination. We loved to play hide & seek of course, & sometimes talked our big hearty laughing Dad into playing too. There were few real hiding places in our tiny maisonette, & I remember my first very successful hiding place (to my mind) was actually under the bedcovers of my bed. The bedspring sagged, & as I was a skinny kid, if I lay extremely flat & kept very very still, scarcely breathing, it took a long time to be found. Or it seemed long. Of course the emotion of excitement had to be kept in check, & it was usually my giggles that meant I was found.

Keeping still...& giggling
Keeping still…& giggling

The next stage of experiencing this state of being ‘nearly dead’ was not nearly so much fun. I was 24 years old, & I was trying desperately hard to hang on to a pregnancy. I was admitted to the women’s ward of a country hospital, & told to ‘keep as still as you can’. This I did, for 10 days. I lay flat. I scarcely moved. I scarcely breathed. To pass the long hours I played patience, over & over again, moving only my hands.

I lost the baby. Then, I had to learn to stand, to walk, to breathe deeply, to return to my life, my work, & my 4 year old child. My body almost physically shut down over those 10 days. My muscles began to waste. My sadness seemed unbearable. I did walk. I went outside. I was dizzy. I stood in sunshine. I felt the air. I hugged a tree. It was strong, cool, detached, impersonal: it cared nothing for me, it just was. I breathed. And I cried.

hanging on means you survived
hanging on means you survived

Yesterday morning I felt this state beginning to take hold. Flatness, stillness, nothingness. I said to my husband, I might just stay here & lie flat & keep still until I die. He asked me why: & I realised I didn’t have a reason. My life is good. Sure there are some very sad things in it, there are some difficulties in it. But mostly it’s just a life, like any other. It’s up to me to Move, to Breathe, to be happy, to hang on…I got up, put my shoes on, went for a walk around the block. On the way I paused at a demolition site, where 6 burly men were pulling a house down. They had trucks, machines, skips. They were stopped, waiting for someone to come & close the huge water leak that was fountaining from the water pipe they had clearly just fractured. They were laughing & talking, enjoying their day: no guilt, no regret. I asked if I could take a cutting from the pink frangipanni tree they had already started to tear out. They gave me advice on how to strike it, & then happily broke the other half of the tree down for me. I carried it home triumphant, envisaging the flowers I might have next year.

just be..breathe in, breathe out, move..
just be..breathe in, breathe out, move..

 

Helen

Helen Wilde is a Teacher & a Senior Counsellor with Diabetes Counselling Online. She is the parent of someone with Type 1 diabetes and has been living with Type 2 diabetes herself since 2001.

If you sometimes feel you would like to talk with someone, maybe from our Team, you can do so via the Registration form here: http://www.diabetescounselling.com.au/counselling-request/

 

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Georgia’s Blog, Relaxation

dreamstime_m_1620624 (2)

So soon into the New Year, it’s easy to get overwhelmed and stressed. Not that I am already, but for Christmas I was given a Pure Indulgence package at a Spa – including a massage, facial and manicure. Even though it was a long day at the Spa it was so relaxing, and at one point I think I may have even fallen asleep to the sounds of the ocean.

After a weekend at the river, being active on the water to then going back to work at a desk, it’s no wonder you get aches and pains. Yes I have made it my mission to get more active throughout the week. However I’m not the only one who feels like this. I always hear my friends complaining about their back, getting headaches from lack of sleep and repeat.

It isn’t the cheapest option, but a body massage is a good idea and after my massage I definitely could get in to the habit of going back.

So whatever it may be, find something that relaxes you. It may take a while but experiment with different mediums whether it be getting your nails done or doing them yourself, or going on long walks, jogs – anything to find a way to create that balance in your life between work and home and all the stresses in between, you have to relax.

I was watching an episode of Full House and one of the main characters was listening to meditation tapes to ‘relax’ but it became a problem when the cement truck backed up and started filling their kitchen with concrete and he didn’t hear a thing because he was in the ‘zone’ – whatever works for you though right?

So this weekend find a way that will help keep you relaxed during the week, but whatever you do – don’t make it a thing you have to do, but want to, otherwise it becomes that added extra on your to do list.

Until next week

Georgia :)

dreamstime_m_1620624 (2)

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It’s all in your p.o.v..changing perspectives

Today is likely to be one of the hottest days on record in Adelaide. It is also going to be the hottest day of any city in the world today, according to the forecasters. How do people handle something like this?

The answer lies largely in how people are situated, and what their outlook on life is.

My neighbours, who are a group of single men living in a Share House with a couple of bedroom airconditioners, were out early this morning polishing the old Mercedes when I went for my ‘diabetes stroll’. We exchanged a few words re the weather, and one of them said, ‘We’re off to Africa, it’s cooler there! Want to come with us?” Here is my mental image of what my day would look like if I’d accepted..

Africaaa
Africaaa

The Adelaide City Council has opened the air conditioned city bus shelter 24 hours all week, & invited the homeless to sleep there. They are providing free cold water. The Charities are working hard too, free lunch & a movie every day. And some of the homeless are cheerfully heading to the free Libraries after the movie, so they can stay in the a/c there. The city is doing its best to look after the less fortunate. I saw a homeless man last night on the TV news being interviewed- he was remarkably cheerful, optimistic, & resilient in his outlook.

Throughout the State, Volunteers are donning fireproof clothing, or volunteering to provide drinks & food for firefighters. With a number of firefronts to manage, people are managing on minimal sleep & in appalling conditions to ‘serve & protect’ the lives & property of strangers. How do they keep it up?

In their personal lives, people are offering help to family, friends & strangers. They are providing shade & water for wild birds & animals, sharing taxis with strangers & space in their homes for neighbours without a/c. They are calling elderly relatives with reminders to ‘keep cool, keep drinking’. They are voluntarily using less electricity in their homes by cooling only necessary areas, in order to avoid the dreaded ‘load shedding’ that threatens.

I have been thinking about this today in the context of the Global online diabetes community. More and more I am seeing the support given to other ‘people with diabetes’: by strangers to each other, simply because we share a common bond: we have diabetes, or we are caring for someone with diabetes- or both. Because it’s one thing to be a caring Health professional, & very important too. And it’s another thing to be able to ‘speak with’ and be heard by ‘someone like me’- someone who is also living this Diabetic life, every single day. Some of this occurs on Twitter, with many Diabetes related online communities. Others are comfortable on ‘bookface’, & we have special interest groups which you may find helpful yourself. Some are Open groups, you can simply join. Others are ‘closed’: that is for the protection of its members, who feel comfortable sharing worries & advice with others who are similarly placed with respect to diabetes. With the ‘closed’ groups, you can request to join, and a group Admin wil review your public profile, & possibly send you a clarifying question by PM.

Here are some of them:

diabetes.counselling

MenWithDiabetes

pregnancyparentingdiabetes

diabetesandfood

parents

diabetesweightmatters ; ruraldiabetes/

You may be just the person who is needed in a Group: your perspective on your diabetes might be just what someone else needs to hear: we are all different, & we are all the same. No matter what type of diabetes you have, or how long you have had it, in this century, in the times we live in, we Diabetics have never been more connected with each other. We can give and find support like no one before us in the History of the World has been able to.

” All of us are human beings first. We are all sons, daughters, mothers, fathers, brothers, sisters, grandparents, aunts and uncles, friends and lovers. We all laugh, cry, get angry, sad; worry and wonder what life is all about.

Then, we are people living with diabetes” Helen Edwards

All of us are human beings first. We are sons, daughters, mothers, fathers, bothers, sisters, grandparents, aunts and uncles, friends and lovers. We all laugh, cry, get angry, sad, worry and wonder what life is all about. – See more at: http://www.diabetescounselling.com.au/uncategorized/people-politics-and-pancreases/#sthash.GANsISUe.dpuf(people politics and pancreases)

(people, politics, and pancreases)

Helen Wilde

Helen has been the mother of a Type 1 diabetic since 1979, and has had Type 2 diabetes herself since 2001. She has been a Senior Counsellor with www.diabetescounselling.com.au since 2002.

 

of us are human beings first. We are sons, daughters, mothers, fathers, bothers, sisters, grandparents, aunts and uncles, friends and lovers. We all laugh, cry, get angry, sad, worry and wonder what life is all about. – See more at: http://www.diabetescounselling.com.au/uncategorized/people-politics-and-pancreases/#sthash.GANsISUe.dpuf

All of us are human beings first. We are sons, daughters, mothers, fathers, bothers, sisters, grandparents, aunts and uncles, friends and lovers. We all laugh, cry, get angry, sad, worry and wonder what life is all about.

Then, we are people living with diabetes.

– See more at: http://www.diabetescounselling.com.au/uncategorized/people-politics-and-pancreases/#sthash.GANsISUe.dpuf

All of us are human beings first. We are sons, daughters, mothers, fathers, bothers, sisters, grandparents, aunts and uncles, friends and lovers. We all laugh, cry, get angry, sad, worry and wonder what life is all about.

Then, we are people living with diabetes.

– See more at: http://www.diabetescounselling.com.au/uncategorized/people-politics-and-pancreases/#sthash.GANsISUe.dpuf

All of us are human beings first. We are sons, daughters, mothers, fathers, bothers, sisters, grandparents, aunts and uncles, friends and lovers. We all laugh, cry, get angry, sad, worry and wonder what life is all about.

Then, we are people living with diabetes.

– See more at: http://www.diabetescounselling.com.au/uncategorized/people-politics-and-pancreases/#sthash.GANsISUe.dpuf

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Christmas is coming- FREE Gifts & an interview with the creator of ‘Diabeadies by Vivi’

Last week I was fortunate to spend the whole week in Melbourne at the Exhibition & Convention Centre on South Bank. When I got home, my husband asked me, ‘how big is the Centre? Is it as big as a railway Station?’ I told him, ‘it’s as big as TWO Spencer Street railway stations T-boned into each other.’ The two T-boned concourses are each incredibly long, and the Convention centre has 3 floors, with an equally long concourse on each level! Then there are the User Spaces themselves, the Exhibition Hall & several Associated display spaces which combine to cover more floor area than many small towns in Australia, and the two Plenary Halls and many meeting rooms of the Convention Centre. I have never been in a larger enclosed space. This space was filled with over 10,000 delegates, plus the Catering and Support staff, and the Exhibitors & Expert presenters from all over the World. Possibly 20,000 people using the Centre on any given day.

At this amazing event, Diabetes Counselling Online made its presence felt. We had 8 wonderful volunteers, one of them doubling as Ph. D. supervisor for our founder, Helen Edwards, and four doubling as staff members and delegates. You can see Helen Edwards’ blog on Words for diabetes here on the event together with a wonderful Video she has put together on Youtube

In the Exhibition Hall, DCO presented THE most popular stand of the week. At some points there were 30 or more people trying to get into our tiny stand. Sure, we had giveaways, our brochures, pens, flyers, satchel bags, & bananas. In addition, our large Screen showing our live website was continually in use, as people from other countries could not believe the service that we provide. We remain unique in the world. Many could not even grasp the concept until they were shown on the screen and talked with one of us. In addition, many Australian Diabetes Educators and other HCP’s who did know us stopped by to collect brochures & say ‘Hi!’.

So as well as providing information about the DCO Service, the Volunteers were also able to Display samples and show samples of the aquamarines, from the World Diabetes Day ‘Blue Circle’ range,to visitors of our wonderful fund raising Product, our ‘Diabeadies® by Vivi’. There was very keen interest, and visitors from countries as far apart as Africa, Indonesia, China, Czechoslovakia, Russia, Turkey, as well as Australia would very much liked to have been able to buy on the spot! Unfortunately we did not have the capacity to do that for them, but we are hoping that the admirers of Diabeadies from last week will find their way to our estore. During the week of the Congress, Vivi launched a ‘Christmas Promotion’, and I thought it might be a good idea to showcase her work here, while that promotion is still running. Here is the promotion:

 

Photo: Matt H, will be receiving two sets of sterling silver amethyst and sapphire earrings with our compliments this week.  They are to go with the amethyst and sapphire bracelets he purchased today - well done Matt!  If you haven't ordered yours yet for Christmas, get in quickly, the offer ends on December 20.  These special orders come in a pretty gift box and bag so you don't even have to gift wrap them!  Just go to http://www.diabetescounselling.com.au/shop/category/e-store/http://www.diabetescounselling.com.au/shop/category/e-store/  to place your order

Matt H will be receiving two sets of sterling silver amethyst and sapphire earrings with our compliments this week. They are to go with the amethyst and sapphire bracelets he purchased today- Well done Matt! If you haven’t ordered yours yet for Christmas, get in quickly, this offer ends on December 2oth. These special orders come in a pretty gift box and bag so you don’t even need to gift wrap them! Just Go to the shop to purchase your item and receive your FREE gift! shop here

 

Just HURRY to place your order

Isn’t it a great offer?

On my return from the World Diabetes Congress in Melbourne to Adelaide, I interviewed Vivi about her process of design.

Here is our discussion!

Q1. Hi Vivi. I love the beautiful jewellery you make. Where do your Beads come from?

A1. All of our Beads are precious Gemstones. They are not glass or plastic. They come from various countries. For example, my aquamarines, from the World Diabetes Day ‘Blue Circle’ range, come from Brazil, the beautiful Moonstones from Sri Lanka, the lovely dark red Garnets come from Africa, and the Amethysts from Russia.

 

Q2.Why do you choose specific stones, and do they have any therapeutic benefits?

A2. All of our stones feel wonderful on the skin. They are also visually beautiful, and both of these properties help me to feel calm & relaxed. I choose the stones I love, and that I think will fit in with the principles of mental health for those living with chronic disease. I choose colours & stones & sizes of gems that I think will work well together, and as every item is individually designed and hand made I put them next to each other so I can decide what goes with what. Sometimes the stones surprise me by working well together when I was not sure they would! I love working with them, and find my stress levels and pain levels are reduced when working. There are many claims by others for the benefits of specific stones, and we have collected some of these beliefs, and can provide them on request. However, they are just that, beliefs. We do not claim any medicinal, curative, or therapeutic benefits other than those of aesthetics, beauty and pleasure. For example, one of the first stones we have used is Amethyst, one of the DCO trademark colours. Here are some of the claims for amethyst by others that we have published on the website :

“Amethyst is the most precious stone within the quartz group. Since purple is considered a royal color, amethyst, the transparent purple quartz, enjoyed an historical importance as an insignia of power. Fine amethysts are featured in the British Crown Jewels and were also a favourite of Catherine the Great and Egyptian royalty.

Amethyst is also a stone for meditation. It is said to be excellent for moving the mind into the alpha brain wave cycle smoothly and rapidly, thus making for a great meditation crystal. Probably that is the reason why amethyst has always been known as a sleeping aid down through the centuries.

It apparently exerts a calming effect behind the scenes; helps one to make judgments and carry out responsibilities. Its calming properties are said to help to moderate high strung temperaments and encourage the binding of the physical to the intellectual and beyond, into the spiritual realms; to stimulate the intellect, but temper it with a universal sense of compassion and connection.

– See more at: diabeadies

Q3.I know that you use both Tibetan silver and Sterling silver in the jewellery that you make. When do you decide to use Sterling Silver or Tibetan Silver?

A3. I use Tibetan silver because it is inert, ie does not react on the skin, beautiful and easy to work with, and a little more affordable than Sterling Silver, so it helps to keep the price down for the hand made beads and charms. However, I use the Sterling Silver for anything which pierces the body, as Sterling Silver is guaranteed to be of the highest possible purity and therefore the best possible product for this purpose. It does make the jewellery a little more expensive to make, and so a little more expensive for the customer.

Q4.I have noticed the special beads and charms that you use. Can customers request particular designs for these? Or ask for more than one per item?

A 4. Yes, all (or most! LOL) requests are possible. Because ALL items are hand made and custom made, and all charms & silver & gemstone beads are hand made, I can make to order. The price will be adjusted according to a customer’s order. Everything with regard to design is negotiable! I can even make a matching necklace if requested.

Q5. Why do you do this?

A5. Well, I love doing it. It’s a pleasurable and interesting occupation, and I have the time to be able to do it. I have always been interested in designing and making things, and have mastered many arts and crafts over the years. In addition, several members of my family live with diabetes, and I like to think that my work making Diabeadies makes a difference in the lives of people living with diabetes.

Q6. Do any of the profits go to Charity?

A6. Yes, all profits go to the National Australian Charity Diabetes Counselling Online. The purchase of just two items will provide introductory email counselling for an Australian living with diabetes, or the purchase of just one item will provide advice from a Dietitian, Diabetes Educator, or Mental Health Counsellor for a Social Media group of people living with diabetes from across the world.

Final question,Q 7. Do you mail order to anywhere in the world?

A7. Yes of course. Prices are quoted in Australian dollars, but we can work out a local costing for a customer. And mailing charges are pretty reasonable to anywhere in the World, as the items are light and easily packed.

Me: Thanks for your time, Vivi! Any Final Thoughts?

Vivi: Just perhaps share one of my favourite quotes: “If you can’t do great things,” Mother Teresa used to say,”do little things with great love…” that kind of sums it up for me- I truly love that I can make this little something that other people see value in and can derive pleasure from.

 

Helen Wilde

Helen is a long term Senior Counsellor with Diabetes Counselling Online, Teacher, mother of a type 1 diabetic for 34 years and a type 2 diabetic herself for 12 years. 

Vivienne McKenna

Vivi is a long term Volunteer and Employee with Diabetes Counselling Online. She lives with Type 2 Diabetes herself, and has several family members with all types of diabetes.

 

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multiple chronic health conditions- who, me?? 7 ways to manage: 7 conditions to manage

al fresco beach

Until Tuesday of this week I did not think of myself as a person with multiple chronic health conditions.

Like many other people, I was one of those who never took tablets – did not go to the doctor for antibiotics unless I was desperately ill, didn’t take panadol or aspirin unless I was really ill (or ok yes, or for the occasional hang over, when I was younger). In the 1990’s I started seeing my first ‘health care practitioner’, a podiatrist. I have weird feet, huge bunions inherited from my Elegant Aunt. Turned out that I walk funny, wear my shoes out lopsidedly. I needed orthotics, just little ones, especially for playing netball & basketball, & bushwalking.

That all changed after the turn of this century. I was diagnosed with high blood pressure. Coincidentally, I’d moved from the country to the city a year before. My country life included competitive sport, riding a bicycle to work, walking every day, sometimes morning and night, and incidental moving all day long in my job. I changed GP’s, changed careers, and now had a desk job with long hours and heavy responsibilities (not in Diabetes). I stopped moving, I ate biscuits, I gained weight. Easy, lose weight, the BP will normalise. I didn’t, it didn’t, so I started BP medication. That’s 1 chronic health condition.

Next I was diagnosed with- you guessed it, type 2 diabetes. This was a shock. I was the Mum of a type 1 diabetic, who was by now an autonomous adult, and a mother herself. Yes, I had a little grandson.. I should have known better, I should have done better. At this point I was taking 1 daily BP pill, a tiny little thing. Easy, lose weight, exercise, the diabetes will go away. I didn’t, it didn’t. So I added in 1 more tablet a day. My diabetes HbA1c test showed it was under control. That’s 2 chronic health conditions. I still saw myself as healthy, just that I was too fat, it was a self image thing, not a health thing.

The third diagnosis was asthma. That one was easy, ‘use this preventer, it’s a seasonal thing’, and that was all ok. That’s 3 chronic health conditions.

When I got a diagnosis of ‘chronic generalised pain + arthritis of hips, spine and knees’ I was terribly disappointed. I tried anti inflammatories, until my orthopaedic specialist and my arthritis specialist, over the course of about 3 years, said, “There is no operation that can help you, and you’re too young for that drug, it’s a risk for stomach & bowels, try this other drug.” I added in one more tablet, and also fish oil, because everyone says that’s good for arthritis. Oh and it’s supposed to be good for cholesterol too, isn’t it? Because yes, I got that diagnosis too. Another tablet, for cholesterol. So now we’re up to 6 chronic health conditions. The final diagnosis was reflux, another inherited condition. So another tablet, an awkward one, as I can only get 2 repeats, while all the others are 5 repeats, so I have to be creative to get repeats for that one. That makes 7 chronic health conditions. That’s not counting unrelated surgeries.

In the last 10 days I’ve my done my HbA1c & other chronic health conditions blood tests; seen Podiatrist; Ophthalmologist; Chiropractor; GP for my Care Plan review & prescriptions & to discuss test results; had my knees x rayed; seen my optician to get my new reading glasses; been to the Chemist, twice; went to the specialist shoe shop to buy special sandals that my (by now huge) orthotics will fit into so I don’t have to wear sports shoes with my professional outfits. Turns out podiatry is very helpful in diabetes, too! Oh, and I’m due to order new test strips for my bgl meter.

But I still didn’t see myself as chronically ill. Until this week. It was the asthma that suddenly got worse. I was seeing my GP for other things, and mentioned the pain in my chest. She upped my preventer, doubled it, and gave me an inhaler as well. The relief I got was amazing. And that’s when I realised I had a chronic health condition. Because I could feel it. And I could feel the benefit of the medication that treats it. That’s motivation enough to use it.

As people with diabetes, we are sometimes described by Health Care professionals as ‘compliant’ or ‘non compliant’. This makes me cross. It means that we either do what we’re told, or we don’t. It takes away the notion of autonomy and decision making. It removes the responsibility of managing our chronic health condition, and removes the responsibility for them to find motivation for us , other than Fear. I’m not a fan of Fear. There’s enough hysteria in the media and misinformation in the minds of the general public with out me having to find my motivation in Fear.

So what does keep me motivated to manage all 7 of my chronic health conditions?
1.I think they sort of ‘feed off’ each other. Because I’m taking one tablet with breakfast, and my puffer, it’s easy enough to take them all, and the same at bedtime. The ‘oddly timed’ ones are harder to remember, the pain medication mid-afternoon, the ‘extra’ metformin at tea time.

2.I have the motivation of watching my beautiful daughter manage her Type 1 diabetes.

3.Like everyone, I have seen good, close friends and beloved relatives die of cancer. I feel so lucky to have treatable, manageable (albeit chronic) conditions. I feel so lucky too to live in a country where medication is so reliable, strictly tested, generously subsidised.

4.I remember that diabetes is not a game of perfect, and neither is any chronic health condition.

5. I have a great Medical support team that I have refined over more than a decade of living with 7 chronic health conditions.

6. And I think it’s because I have diabetes and I work and volunteer in diabetes. It’s not all I do, I have another career. I also do other volunteering. But through working in this field I’ve been in contact with you, and so many other wonderful, brave, scared, sometimes depressed or sad people living with diabetes. I have also had opportunities to learn about my chronic conditions, some of that from the lovely team here at DCO, and to feel empowered.

7. I am driving my own life, not trying to please a doctor, not feeling I have to make excuses or make up stories about taking medication when I haven’t. Like lots of Australians, the ABC Catalyst programme last week made me question my GP about my cholesterol medication, and after thinking it over, I have decided to continue to take it. I’m too young to risk heart disease and stroke.

7 chronic health conditions: 7 strategies for managing them all.

Helen Wilde

Helen is a long term Senior Counsellor with Diabetes Counselling Online, Teacher, Counsellor, mother of a type 1 diabetic for 34 years and a type 2 diabetic herself for 12 years.

Talking with one of our team may help you work out what your barriers are and how to develop a plan of action to work through, over or under the barriers!

al fresco beach

 

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