The mindfulness of food

Food, food food.

Somewhere in the Western world we have gone wrong. There are still many people in the world who have no food. Children who are starving, Dying. And we sit here with an abundance of the stuff. We keep getting fatter and unhealthier as a collective group. We keep throwing food away. Gorging ourselves. Up-sizing and making reality cooking shows about total indulgence in food – people crying about their souffle not rising.

What must that look like? Even in our daily lives there are families who don’t have enough and families who have too much.

But this blog is not about that terrible inequality. The tragedy of the way we have set up our world in a way that seems too hard to change. A world in which those who have too much do not offer to really, genuinely help those who have too little.A world in which we are so focussed on food, cooking, diets, weight loss, calories, problems with food, where to go to get food, with industries that control our food and remove us from where our food comes from.

No, today I am writing after a comment from another person with diabetes (thanks to Bruno) about how “other people” (those without diabetes) probably do not know the calories in everything they eat, let alone the carb content. He wrote that diabetes has in fact made him healthier.

It got me thinking about what it must be like to be able to mindlessly choose anything you want to eat.

Not to think about how many calories, carbohydrates, fats and sugars each morsel has in it. Not to have to calculate a maths problem every time you eat. Not to have to wonder what sort of impact eating a meal is going to have on the rest of your day or night. Not having to keep a tight eye on your BGL’s for the rest of the night after a lazy Sunday afternoon of “slow eating” – you know, the kind of day most people savour, where the sunshine is warm, the day is long, the food is plentiful and comes in many courses over a period of hours, leading to a nightmare of calculations for a person with diabetes. And sometimes it is just not worth the bother.

It got me thinking about how when I watch people tucking into a meal that I can see has 150 grams of carbohydrates in it there is NO WAY I am tackling that baby. Or how it must feel to walk into a cafe and be able to choose anything you like, without thought. That must be something.I have had to think about every piece of food that has gone into my mouth for 33 years. That is a long time. And sometimes I want to be free from that.

But then I got to thinking again about how privileged I am. About how I can go into a cafe and choose food. About how I can have a house full of food. About how I am one of the people who does have enough.

And then, I remembered how lucky I am.

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Do Unicorns get diabetes?

I was at the doctor today for a non-diabetes related thing, a “woman’s” thing. I was already feeling a little uptight, wishing I was not there, thinking about all the things I needed to get done today and wondering why she was running 45 minutes late. I contemplated running out, telling them I had another appointment to get to, but I didn’t. I knew it had to be done and as I was there and had already waited, I might as well go forwards. You can catch up with a lot while waiting for the doctor – I did not even know Rebecca Gibney had put on weight and there she was having lost 15 kilos on a diet described as “diabetes friendly”! Which essentially meant virtually no food and a LOT of water.

So back to the moment, the GP called me in. A lovely doctor she is, very smart and caring, someone you feel blessed to have found as your GP. I also have a multitude of what I call “Ologists” in my life. You know, the ENDOcrinologist, the GASTRoenterologist, the OPTHAMLologist, the RHEUMAtologist, the NEURologist and have even had over the years “ologists” related to my blood, skin, lungs and more.

So, here I sit about to undergo this procedure and she smiles and asks “and how are your sugar levels?”. Inside I think “WHY are you asking me that? Well I have type 1 diabetes so you know, I guess they are CRAP….” but instead I go into my “patient” mode and answer “oh you know, OK, well actually with my gastroparesis they have been pretty up and down lately and oh, I have been sick too, so yeah, they have been a bit up and down”.

That is an understatement.

I have been riding the rollercoaster with the 3.5 – 25 mmol the past few weeks. But I smile and make excuses. – explaining again why my blood glucose levels are not always 3.5 – 8 mmol (because if you did not know it, diabetes is very easy to manage and you should be able to achieve these levels).

Lovely doctor she is, she asks me if the gastroparesis causes “dumping” of glucose into my blood stream. “Yeah, pretty much” I answer. And then try to give an explanation of what happens but start to feel a little upset and realise that this is probably something I am still dealing with so I stop and change the subject.

Feeling now a bit like I did all those years ago when my parents took me to the children’s hospital every 3 months and we would sit in the rabble of outpatients to await prodding, poking and judging. And worse still, the short time where I was “transitioned” to the adult hospital and shared this space with a lot of elderly people with type 2 diabetes feeling like an alien until my lovely (and still current) Endo started a young people’s clinic………

She later asks me if my Endo does my urine checks for protein and I make sure she knows that this is the case and that I am not here for my diabetes.

Don’t get me wrong. It is brilliant to see an engaged and switched on GP who wants to make sure her patient has all of her needs covered. Sadly this can be lacking in many cases and I know of people who have the complete opposite with their doctor ignoring their diabetes. But it made me think about how easy it is to slip into “explaining” your blood glucose levels, as if it is somehow your fault they are up and down and that if you just managed better, they would sit in that fantasy zone of 3.5 – 8 mmol all the time. And actually I think there may also be unicorns in this fantastical world.

So, consultation finished, job done, back to work. Feeling a little less in control and a little more like a person trying to manage a disease that can sometimes be so unmanageable. Amazing what a trip to the doctor can do for you isn’t it. Time to stop explaining and just tell it like it is. I wonder if I can.

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Reality or ?

I love reality shows. I mean I really love them. Well some of them. I am a total sucker for anything relating to singing such as the latest installment “The Voice”. I have been a dedicated Idol fan and have even ventured into the X-factor and others. This stems from my unmet desire to spend my life as a singer and my passion and need, to sing. I love singing. As all the contestants say as they stride up with sweaty palms and faces full of fear “it’s what I do, it’s all I ever wanted for my whole life (even if they are only 16), it’s just something I HAVE to do”. Yes if I am stressed, sad, bored, angry, happy or anything in between, a good singing session makes me feel totally at peace. And I pursued it for a while. As a young person I was told to keep pursuing it. But babies and life, got in the way. This does not however stop me from singing or enjoying music. The last time I checked it costs nothing to open your lungs and sing.

Other reality shows I have been known to be drawn in by include Survivor ( I LOVE the host Jeff Probst ). There is something about the idea of being shipwrecked on a desert island that is compelling, even if it is along with a massive crew, a medical team, cameras in your face and a cute host. What I think it is about this one is that it is actually incredible how these people survive. And I wonder how some of those girls manage to make a bandana into a skirt. And of course there is all the infighting and back stabbing – television gold.

I am currently hooked on The Biggest Loser. I find this one tricky. As a person who has been overweight, very overweight and a health care professional working in diabetes, I know that the way these people lose weight is definitely NOT reality. Nobody in life gets to spend 6 hours a day training, locked in a house with no distractions, with buff trainers working your ass off and not allowing any potatoes or bread (didn’t you know those things are evil?). But there is the Commando…….and the tears and amazing human stories and ways that people open up their hearts and talk about their lives. Despite all the contrition, continual repeating of scenes after ad breaks (seriously do you think we are so dumb we lost memory of what happened 5 minutes ago and need a refresher?), manipulation and knowledge about how these shows are set up – it still makes me cry. And you can bet I will be front and centre tonight at the big reveal.

 

Yes I have also watched a few seasons of Big Brother, although I am not sure I will be able to stomach it this time around. (but who am I kidding I am bound to have a peek); Race around the World: various versions of rennovation and building shows and once, just because I knew someone in the show, Masterchef. Cooking shows are the ones that puzzle me the most. People salivating, crying and arguing over cooking a pavlova really does not rock my boat. Perhaps it’s because as a person growing up with type 1 diabetes food really has a different meaning and I have a different relationship with food than your every day person. Those of you who live with diabetes will get what I mean. And since developing serious issues with diabetic gastroparesis food has become something I just need to get in to my body. I am still dealing with the grief of losing the pleasure of food. Or perhaps it’s because at the same time this is showing we are watching obese people who were also obsessed with food, try to lose all the weight and change the way they relate to food. Or the fact there are so many people in the world who simply have no food.

I was thinking that maybe the reasons we love “Reality TV, is that it is not reality. These shows are more like “unreality”. They are more like dreams. Things people would love to do, to have happen to them. What you love depends on what you wish you could do, have or be, in your life. And of course there is always the prize money and the very short lived celebrity status that comes with a good reality show.

It does bother me that this has become pretty much the primary source of television programming – oh except for violent crime scene shows, but that is another whole blog. I wonder if it means people want to live in a dream world at the end of the day, to watch other people living out their dreams rather than go for their own dreams.

If I could make the perfect reality show it would have a cure for diabetes, along with all the other terrible diseases, no poverty or hunger, no war or violence, everyone with enough and caring for each other and the planet. But perhaps that reality show is too far out of our reach.

See you on the couch.

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Don’t dry those tears

I remember when I started my Narrative Therapy therapy training and we talked about “tears” as a language all their own, a way to communicate that can be so vast, so complex. That tears can be something to linger in, to focus on. That rather than making assumptions about why someone is crying and trying to “dry up those tears”, we can look at the tears as we would look at a spoken word. We talked about asking people when crying in a counselling session, “what are those tears about?” What are those tears saying?

Babies use crying as their first form of communication. We expect babies to cry. Yet we don’t like it and often we feel stressed by their tears. When our children are hurt we quite rightly want to make them better. But it is not the tears that need to be taken away. It’s the problem, fear, worry, or hurt that has started them off. The tears are just a way of telling about these things. As we get older tears become expressions of many things but often we seem to want to get rid of them.

This was a very interesting idea to me, that tears are something to dive into, to explore, not something to try and hide or pity, or be uncomfortable about. That tears could be just as important in a conversation as words are.

Sometimes when another person cries there is an overwhelming desire to make them stop, to stop the hurt we presume is there. Or maybe sometimes we just don’t want to deal with the other person’s emotions, it may be too much for us. When we are little and we hurt emotionally or physically we cry and someone, often our Mother, tells us “there there, don’t cry, it will be alright”. We seem to associate tears firstly with sadness, but we also know they can speak of great joy, of laughter, anger, frustration, stress, fear, of love and of loss. We try to control our tears, to not cry in certain situations, or wonder why we can’t cry when we feel we should. We tell little boys not to cry, that men don’t cry, yet we know this not to be true. We somehow associate tears with weakness, with an inability to cope, rather than what they are – part of the way human beings communicate our amazing array of emotions. Children can be cruel and tease calling other children “cry babies” as if it is something to be scorned.

Some of us cry more easily than others. I am a crier and have been known to cry at an obviously devicive advert on television – you know the ones with Mum’s smelling their babies hair while they cuddle the packet of nappies and all that heartbreaking music…. I am also one who cries when I hear a song that pulls at my emotions, in film, books and any other experience that connects to emotions.

For example, if I hear “100 years” by Five For Fighting, I am toast.

Here are the words (it’s not the same without the gorgeous music, but you get the gist with the lyrics)

I’m fifteen for a moment
Caught in between ten and twenty
And I’m just dreaming
Counting the ways to where you are
I’m twenty two for a moment
She feels better than ever
And we’re on fire
Making our way back from Mars
Fifteen there’s still time for you
Time to buy and time to lose
Fifteen, there’s never a wish better than this
When you only got hundred years to live
I’m thirty three for a moment
Still the man, but you see I’m of age
A kid on the way
A family on my mind
I’m forty five for a moment
The sea is high
And I’m heading into a crisis
Chasing the years of my life
Fifteen there’s still time for you
Time to buy, time to lose yourself
Within a morning star
Fifteen I’m all right with you
Fifteen, there’s never a wish better than this
When you only got hundred years to live
Half time goes by
Suddenly you’re wise
Another blink of an eye
Sixty seven is gone
The sun is getting high
We’re moving on
I’m ninety nine for a moment
Dying for just another moment
And I’m just dreaming
Counting the ways to where you are
Fifteen there’s still time for you
Twenty two I feel her too
Thirty three you’re on your way
Every day’s a new day
Fifteen there’s still time for you
Time to buy and time to choose
Hey fifteen, there’s never a wish better than this
When you only got hundred years to live

So if you like me, can tap into emotions just by seeing a couple kiss in the street, by watching a corny movie, hearing a song – you will understand why the lyrics above (coupled with a stunning vocal) get me every time.

Just stop for a moment and think about all the moments in your life – major and fleeting ones – where tears were present.

If I think about just some of mine it is incredible how often tears were there with me. There’s the big moments, like when my Great Aunt Lucy died. She used to give me a beautiful little china animal each time I saw her from her cabinet which was magical to me. I was just little, maybe 7 or less and I hid under the kitchen table when Mum told me. I remember at such a young age feeling such grief. Or when I got diagnosed with type 1 diabetes at the age of 12 and I was scared and somehow I knew the loss this was and what this would mean for my life. When I fell in love countless times as a teenager and young woman, but it didn’t last, or they didn’t love me enough……or I just didn’t love myself enough.

All of those hilarious moments with my girlfriends, boyfriends, family and children over the years where we laughed and laughed until we cried. Like the time my son and I were buying a wedding present and decided maybe a PEZ machine would be good! So we ended up remembering the Seinfeld PEZ episode (if you have seen it you are with me here) and then saw a gumball machine and decided to get that as a wedding present. Tears were flowing in the lolly aisle at K-Mart that day I can tell you!.

Or the really big moments of joy such as when I got married and I was so anxious I could hardly get into the Limo my Sister had hired for me but when I saw my husband the tears of anxiety turned into tears of joy. When my 3 beautiful babies were born and there were tears of fear and the biggest tears of the greatest joy I have ever felt in my life. When my children tell me stories about their day, or do something incredible (which can be a tiny thing but to me is incredible), as they grow up at each and every stage.

Or the tears that spoke of darkness when I suffered with depression and the tears became outward signs of the black hole I had fallen into and a way to try and tell people how lost I was……

And finally those deepest moments of grief where tears say so many things all at once, such as when I lost my father-in-law to cancer, my gandfather to dementia, my mother-in-law to motor neurone disease and just this week, one of my best friends at just 38 – I cried so much when she passed away that day, I thought the tears had passed and would not return when they were “expected”. But of course they came back at all the “right” moments – those being the ones that were right for me to tell of my deep sorrow and of my joyful memories of her life. Isn’t it amazing how tears and laughter can happen at exactly the same time and both be associated with sorrow and grief?

As a Social Worker I have witnessed so many tears of so many people. I don’t think a person with diabetes ever leaves a counselling session for the first time, without the need for tissues. Often this is a release. They have been holding on to their worries, fears, anxieties, guilt and lack of understanding from other people for so long, that when they get the chance to let all of these things tumble out, the emotions come too and with this comes the tears. These tears are good tears. They are the kind of tears that do let me ask “what are those tears saying” and help us to join together to look at ways to move through problems and painful feelings and thoughts. I feel very honoured to be able to share in these tears.

Next time someone sheds a tear, don’t try to make them stop, don’t assume you know what these tears are about. And certainly don’t try to pretend the tears are not there. “Be a man” – and have a good cry with them. Next time you feel tears on their way, stop and tune into what they are saying in your life. It may be nothing other than the physical outlet for a tiring day, a good laugh or a small frustration. They may be the words for a deep emotion you are feeling such as joy or loss. Whatever they are saying, embrace them in all of their salty wet glory.

“There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are messengers of overwhelming grief…and unspeakable love.” Washington Irving.

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Why is it so hard to choose sometimes?

 

 

Decisions Decisions Decisions.

“Never cut a tree down in the wintertime. Never make a negative decision in the low time. Never make your most important decisions when you are in your worst moods. Wait. Be patient. The storm will pass. The spring will come.”
Robert H. Schuller

 

 

Good advice and very lovely Robert and in many cases I agree with you. However there are times in life when you HAVE to cut a tree down in winter, or make a decision in a low time. Sometimes, there is not time to wait, to be patient. Sometimes the decision needs to be made right now.

 

“In any moment of decision, the best thing you can do is the right thing, the next best thing is the wrong thing, and the worst thing you can do is nothing.”
Theodore Roosevel

I think that Teddy says it all. Sometimes you make the best decision you can at the time and it is better than doing nothing. Sometimes there are so many pros and cons, so many parts to the whole, that it is overwhelming.

Watching my dear dear friend’s family have to make the decision to turn her life support off last week was one of the most heartbreaking and “no win” decision making moments I have ever witnessed. A parent losing a child is surely the greatest grief. A parent having to make the decision about this is just plain tragedy, cruel and unfair.

I watched this family make this decision however, in the spirit of the two great men above – they did wait. They gave themselves time until they were all together. They made sure the were no other real choices. They gave time to themselves and others, to try to grapple with the only decision they had. They made the best decision, the one she would have wanted. They also decided to let other people come to share in this time, so we could support each other, which was a decision of generosity, love and deep human caring. It was not a decision anybody wanted, but it was the right decision.

I had to make decisions too. I joined 4 other women and we sat and held her until she passed. This was not a hard decision for me. I knew with all my heart that this was the right decision, to go and be with her and her family. Not an easy thing to do, to watch someone you love pass away. But being able to tend to her and hold her while she left was a gift given to me by her family and there was no question in their decision about inviting me to be part of her passing.

We all make decisions each and every day, from what to eat for breakfast, to what to wear, to what road to take to work. These tiny decisions don’t really matter. They are at the very far removed end of the street from the one above. As a person living with type 1 diabetes I make decisions about my management many times each day. Sometimes I beat myself up about the outcomes of these decisions. “Oh I had too much insulin”, “damn I did not calculate the carbs in that right”, “that is typical, I am exercising and now I am low, should have had less insulin” and so on and so on.

These are important decisions. They matter as they affect how I feel, how my health is, how stressful may day will be and in the long run, how healthy I will be. However in the context of this big decision I have just experienced, they are nothing. They are but ongoing, regular decisions – ones that I DO make in the best of intentions, with the information I have at the time – sometimes it does not work out. That is ok. I think we need to stop beating ourselves up about our decisions around our diabetes. Most of us are doing our best. Most of us will live long and happy lives no matter whether we had a unit or two less or more insulin than we needed, ate the whole cake or a slice, or exercised too much or not at all.

Unlike my sweet friend, most of us will have the privilege of living long, healthy, happy and fulfilling lives no matter the decisions we make.

Today, when you have a decision to make? Just go with your gut. Make a stand, make a decision and then get on with it – life is too short to dwell on the decisions we didn’t make.

RIP my sweet sweet Allison.

xxxxx

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