Refuse to Give Up

Everything is Possible

 

One of our Facebook members wrote this recently:

Let me start by saying SORRY for the lengthy BIO, but every word is important…. please continue to check your blood sugar levels and look for ANY skin cuts scrapes and scratches for infection…. (foot care plan)

I had a simple blister the size of a dime/5c piece….that turned into staph infection…..

 

…..which, after a 30 day hospital stay….. I lost…..

…….I LOST my leg to this infection

Learn from my lesson…..it sucks to go thru life with one limb and to be single……

After spending 30 days in the hospital the doctors came to me and explained that the staph infection had migrated into the bone of my heel and I had two choices at that point ….

My leg or my life….

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From little things…………

So, I said to the doctor ……if they are my only choices, then give me the saw and I will do it myself.

 

It took me 90 days to heal from surgery.

I got fitted with my first (artificial) leg in October and I started physical therapy right away.

My fiancé was amazingly supportive (at the time).

While I was in the hospital I lost my job and medical insurance also. I started a ‘go fund me’ account and was able to raise enough funds for my first leg.

My first goal was to walk well enough to escort my fiance down the aisle because we were planning a wedding.

the first goal was met ….we married in jan of 2014.

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then my next goal was the 5Km run by jun 2014, my ampuvesary….again now my woman, now my wife, so amazingly supportive.

 

During the PT and training for the 5Km there were setbacks….in had hospital stays in may and august….by the way met my second goal…..did my 5K on june 25th…it felt awesome.

during my last hospital stay in august it became too much for the wife to handle….

……while i was still in the hospital she moved me out…..she told me this when I called her and said “honey you can come pick my up from the hospital I am being released today”……

well it wasnt only the hospital that released me

….she did also….she told me I needed to find some place else to live…sorry….undaunted I have goals to meet and set…..and life to live….I immediately started training for my second 5K in october 2014 and set the 150K bike-a-thon goal then.

I am doing my 3rd 5K this coming weekend. I found out about the basketball league through PT….my therapist is one of only 5 in our state that work exclusively with amputees and understand our specialized needs.

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I joined…we play at the Disability Empowerment Center in Phoenix AZ, US.

the basketball league is one of several that play high school and college exhibition games for charity. we are organizing around the US to challenge and compete against other amputee team around the country.

 

My wish for everyone to understand and learn

is NO MATTER you limitations….you are NOT disabled you ARE DIFFERENTLY abled!!

Get involve with your local disability centers….if you dont have one then walk,run, roll…keep moving….jion a gym just be active. gentlemen i never even ran to the mailbox to check the mail….so i wasnt really an athlete before the amputation.

 

I thought my diabetes wasn’t serious…

did really worry about diet….didnt check blood sugars,,,,,maybe if i remember i took my insulin…..please again take our disease seriously…its a killer…..BTW….listen for me in 2015 on the air online radio….i will be hosting a radio world wide broadcast called Different Abled and DISABLED….it has become my passion to share life doesn’t end it newly begins…..

REFUSE to give up, FIGHT to move on, and CONQUER the MONSTER diabetes

Everything is Possible
Everything is Possible

 

Thanks Steve for sharing your strength, resilience and amazing attitude with us here at Diabetes Counselling Online.

Kind Regards

David, Diabetes Educator @ Diabetes Counselling Online

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Diabetes and Hearing Loss

Insulin: The Comes a Time
Some evidence shows people living with diabetes are at an increased risk of some level of hearing loss
Some evidence shows people living with diabetes are at an increased risk of some level of hearing loss

As people living with diabetes are at a greater risk of developing hearing loss, audiological tests to monitor auditory (hearing) function should be introduced into comprehensive packages of care provided by diabetes services.

The American Diabetes Association report, ‘Standards of medical care in diabetes – 2014’ recommends that hearing impairment be assessed and addressed as one of the common comorbid conditions that may complicate the management of diabetes.

The Australian RCGP Microvascular disease risks does not includehearing loss as a risk Renal (kidney) impairment and CKD
Neuropathy (nerve damage)– peripheral, autonomic
Retinopathy (damage to the eye) more HEAR

Further research and evidence-based outcomes may support the introduction of indicators to identify hearing difficulties in the diabetes population. More HEAR

In one research paper, sensorineural hearing loss was more common in people living with diabetes than in the control nondiabetic patients, and severity of hearing loss seemed to correlate with progression of disease as reflected in serum creatinine. This may have been due to microangiopathic (small blood vessel) disease in the inner ear.

A review of the literature by these authors, and their study, suggests a moderate link between poor blood glucose control and progression of hearing loss.

Because audiologic data from patients with diabetes not experiencing hearing loss was not available, the exact impact of diabetes on hearing loss is still not clear.

However, this study does demonstrate that data mining can be used to identify poorly defined disease relationships and suggests that screening all patients with diabetes for hearing loss in a prospective manner may be useful for a clearer understanding of this disease process. More HEAR

Don't wait for your wheels to fall off.....  talk to your doctor about having your hearing tested
Don’t wait for your wheels to fall off….. talk to your doctor about having your hearing tested

The American Speech Language and Hearing Association comments that “building epidemiological evidence depends on a robust definition of a condition, so that results can be compared across studies.

For hearing impairment, however, no definitive definition has been established. Recently, using audiometric data from the National Health and Nutrition Examination Study, investigators evaluated hearing impairment using high-frequency (3000-, 4000-, 6000-, and 8000-Hz) as well as low- or middle-frequency (500-, 1000-, and 2000-Hz) averages, at two levels of severity (>25 and >40 dB HL), in both the worse and better ear (Bainbridge, Hoffman, & Cowie, 2008).

The results demonstrated that the prevalence of hearing impairment depends on how the condition is defined, but a greater prevalence of hearing impairment was observed among adults with diagnosed diabetes than without, regardless of the definition used”

Talk to your doctor about having your hearing tested
Talk to your doctor about having your hearing tested

The data also suggest that people living with diabetes may experience hearing loss at earlier ages.

 

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Navigating the Australian Health System

021

Health care in Australia is divided between Federal and State responsibility.

To make the most of the system it is wise to understand how to navigate these systems, so you can get the best ‘value’ to enable your diabetes self care plan to be most efficiently and affordably implemented.

The International Diabetes Foundation recognises that “People with diabetes have the right to understand their disease, make informed choices and receive care based on best practice. They must be part of the team that manages their condition.This can only be achieved if interdisciplinary teams and people with diabetes have the information and tools to make changes based on best practice and recognized improvement strategies are used to support meaningful system change.”

All too often people living with diabetes do not get the opportunity to have the specialist input from a diabetes educator or dietitian.

To make your diabetes self care plan most effective it is in your best interest to have an appropriate level of diabetes self management education.

A diabetes educator provides diabetes self-management education for people with diabetes. They play a major role in self-empowering the person with diabetes by focusing on an individual’s needs, providing knowledge, motivation and support to aid the prevention of diabetes related health complications.

Diabetes Educators have many years experience (some living with diabetes themselves) and can provide you with tailored education, upon the following:
  • Self blood glucose monitoring.
  • Oral hypoglycaemic agents.
  • Insulin initiation and titration.
  • Sick day guidelines.
  • Hypoglycaemia recognition and management.
  • Complication risk management.
Accredited Practising Dietitians can, in addition, provide you with a nutritional assessment and advice tailored to your individual needs, in addition to education upon the following:
  • Influence of nutrition on blood glucose control.
  • Carbohydrate counting and information.
  • Weight management.
  • Blood lipid management.
  • Related health issues.
  • Complication management.
  • Hypoglycaemia recognition and management.

State Health Systems:

State health systems often provide services such a diabetes self management education courses at community health centres or in public hospitals.

These courses may be a combination of individual and group self management education sessions, usually run by a diabetes educator and a dietitian. These diabetes self management programs are usually free.

Whatever type of diabetes you have been diagnosed with, this is a good place to start.

To find out more about what is available in your area make contact with your local hospital or community health service.

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Navigating the System to Better Health

Another way to find your local diabetes self management programs is via Diabetes Australia or ADEA.

What’s Next

By initially connecting with these state funded health care professionals, you can then navigate the Medicare system with your GP to connect in an affordable manner with other members of your health care team. e.g. podiatrist, exercise physiologist, psychologist/counsellor etc (ALL of whom are covered by the Medicare system).

Medicare – Federal Government Funding

Talk with your GP about the Medicare system, whats available to people with chronic health issues like diabetes.

The Chronic Disease Management (formerly Enhanced Primary Care or EPC) — GP services on the Medicare Benefits Schedule (MBS) enable GPs to plan and coordinate the health care of patients with chronic or terminal medical conditions, including patients with these conditions who require multidisciplinary, team-based care from a GP and at least two other health or care providers.

A chronic medical condition is one that has been (or is likely to be) present for six months or longer, for example, asthma, cancer, cardiovascular disease, diabetes, musculoskeletal conditions and stroke. There is no list of eligible conditions; however, the CDM items are designed for patients who require a structured approach, including those requiring ongoing care from a multidisciplinary team.

Whether a patient is eligible for CDM services is a clinical judgement for the GP, taking into account the patient’s medical condition and care needs, as well as the general guidance set out in the MBS.

Patients who have a chronic medical condition and complex care needs and are being managed by their GP under a GP Management Plan (item 721) and Team Care Arrangements (item 723) are eligible for Medicare rebates for certain allied health services on referral from their GP.

In summary:
  • Maximum of five (5) services per patient each calendar year
  • Medicare rebate of $48.95 per service, with out-of-pocket costs counting towards the extended Medicare safety net
  • Patient must have an Enhanced Primary Care (EPC) plan prepared by their GP (your GP is paid to produce this for you)
  • GP refers to allied health professional (referral NOT required if that health care professionals happens to be available for free in the State health care system)
  • Allied health professional must report back to the referring GP

CAUTION: In creating the Chronic Disease Management Plan ensure YOU and your GP knows who is available in the State health system for you to enable the best use of this plan.

Team Care Arrangements (item 723)

  • Provides a rebate for a GP to coordinate the preparation of TCAs for a patient who has a chronic or terminal medical condition and also requires ongoing care from a multidisciplinary team of at least three health or care providers.
  • In most cases the patient will already have a GPMP in place (but this is not mandatory).
  • The minimum claiming period is once every twelve months, supported by regular review services.
  • Involves the GP collaborating with the other participating providers on required treatment/services, agreeing to arrangements with the patient, documenting the arrangements and a review date in the patient’s TCAs, and providing copies of the relevant document to the collaborating providers.
With good self care knowledge everything is possible.
With good self care knowledge everything is possible.

A Diabetes Self-Management Plan Review form can be downloaded here Diabetes. This document shows a guide to the goals made in collaboration between the doctor and the person living with diabetes.

CAUTION: If you have more than one of these in place, e.g 2 different doctors making 2 different plans for you, your health care provider may end up out of pocket and may charge you the full fee for service – with no rebate owing to you.

Any questions? Please ask, even the smallest of questions.

Kind Regards,

David, Diabetes Educator @ Diabetes Counselling Online

 

 

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Sleep & Diabetes

baby sleep

How are you sleeping at night? All too often, the answer is the same: not well.

Diabetes and sleep problems often go hand in hand. Diabetes can cause sleep loss, and there’s evidence that not sleeping well can increase the risk of developing diabetes.

Symptoms

Symptoms associated with insufficient sleep include feeling tired, irritability, slurred speech, blurred vision, memory loss, inability to concentrate, episodes of confusion, hallucinations, nausea, impotence and reduced sexual drive. Extreme sleep deprivation can cause psychosis and death. However, there are no documented cases of a healthy human dying from sleep deprivation (although mortality from accidents does occur). Before death occurs in healthy, sleep-deprived humans, the brain forces itself to have ‘micro-sleeps’.

Evidence

In the past decade, there has been growing evidence that too little sleep can affect hormones and metabolism in ways that promote diabetes.

Current data suggests that the relationship between sleep restriction, weight gain and diabetes risk may involve at least three pathways: 1. alterations in glucose metabolism; 2. upregulation of appetite; 3. decreased energy expenditure. from The Metabolic Consequences of Sleep Deprivation

A 1999 Lancet study at the University of Chicago – the researchers monitored the blood glucose levels of 11 healthy young men who were allowed only four hours of sleep per night — from 1 a.m. to 5 a.m. — for six nights.

That study showed that after only a week of short bedtimes, their glucose tolerance was impaired. There could be dramatic effects even after only a week.

After 6 nights of little sleep, the men had higher-than-normal blood glucose levels. (The levels were not high enough to be diagnosed as diabetes, however). The effects went away once the men were back on their normal sleep schedule.

Experts also believe that chronic sleep deprivation may lead to elevated levels of the stress hormone, cortisol. Elevated cortisol may in turn promote insulin resistance, in which the body can’t use the hormone insulin properly to help move glucose into cells for energy.

young girl sleep

Low Sleep = High Blood Sugar?

High blood glucose level is a red flag for sleep problems among people with diabetes.

Diabetes and sleep problems often go hand in hand. Diabetes can cause sleep loss.

If the blood glucose level is high the kidneys want to pass this excess glucose out in the urine. Getting up to pee in the middle of the night disturbs the sleep.

People who are tired will eat more because they want to get energy from somewhere. That may mean over-eating during the day > higher blood glucose level at night> getting up to pee>poor sleep etc etc.

Eating well throughout the day – having a safe and effective diabetes self care plan – to have your blood glucose level on target may have you be able to sleep better at night.

Low Sleep = Low Blood Sugar?

Conversely, having a hypo during the night is likely to wake you and destabilise your sleep.

A wise action to take would be to measure your blood glucose level occasionally at 2-3 am in order to exclude overnight hypoglycaemia.

The Link Between Lack of Sleep and Weight

Some studies show that people who get less sleep tend to be heavier than those who sleep well. People who are tired will eat more because they want to get energy from somewhere. That may mean over-eating during the day > higher blood glucose level at night> getting up to pee>poor sleep etc etc.

Sleep loss could also affect energy expenditure via its impact on the levels of leptin and ghrelin. Since several human studies have demonstrated reduced levels of leptin after sleep loss, it is possible that the reduction in leptin is associated with a reduction in energy expenditure. Similarly, the increase in ghrelin after partial sleep restriction could be associated with a decrease in NEAT (Non-exercise activity thermogenesis). *Experimental evidence is currently lacking to support either hypothesis*

sleep loss weight 1

 

Sleep Apnea?

There is also a link between diabetes and sleep apnea, a sleep disorder marked by loud snoring and pauses in breathing while you sleep. The culprit may be excess weight, which can cause fat deposits around the upper airway that obstruct breathing. So being overweight or obese is a risk factor for sleep apnea as well as diabetes.

If you have diabetes, are overweight, and snore, tell your doctor. You may need a sleep study.

Sleep apnea can prevent a person from getting a good night sleep, which can worsen diabetes. In sleep studies, you are monitored while you sleep for sleep disorders such sleep apnea.

There are many effective treatments for sleep apnea. These include lifestyle changes such as weight loss for mild cases and devices to open up blocked airways for more significant cases.

Sleep: How Important?

In general, people living with diabetes have to be very careful about sleep. Anything that throws off your routine can make you feel a lack of energy and fatigue. The more fatigued you feel, the more your motor is running, and the more likely you are to develop insulin deficiencies.

How Much Sleep?

On average, we need 7.5 hours per night, but your sleep requirement is genetically determined and varies.

It can be about four hours on the short end to 10 or 11 on the long end.

Want to know if you are sleep-deprived? The answer is simple…..If you use an alarm clock, you are. If you were getting adequate sleep, your brain would awaken you before the alarm goes off.

HELP

Improve your sleep habits: SNORE Australia

MJA (Medical Journal of Australia) Sleep Disorder Supplement

Australasian Sleep Association

So, turn off your electronic device…. and go get some sleep! :)

Kind Regards,

David,

Diabetes Educator @ Diabetes Counselling Online

 

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Blood Glucose Level in Hospital

Teamwork ....will get you everywhere ... especially home sooner from hospital

Australian Diabetes Society (ADS) produced the document Guidelines for Routine Glucose Control in Hospital 2012

In hospital different situations require specialist guidance
In hospital different situations require specialist guidance

The aim of this document is to provide guidance for the management of hyperglycaemia in a range of hospital situations.

As a people living with diabetes you an use this guide to ask about your care when admitted to hospital, or as a part of your sick day management plan (in the event of an urgent hospital admission).

The ADS has focused on the management of hyperglycaemia in people with myocardial infarction and stroke, on general hospital wards, and other matters they may be admitted to hospital with.

The optimal means of achieving tight blood glucose management, the role of the specialist inpatient diabetes team, inpatient management of insulin pump therapy, and general measures for diabetes management have also been examined.

The document also provides guidance for the follow‐up of people who have been newly discovered hyperglycaemia.

The recommendations were based on evidence obtained from systematic reviews where trials had been performed; otherwise they were made by consensus.

 

What Glucose Target Should be Aimed for in Acute Myocardial Infarction (heart attack)?

Studies indicate that persistent hyperglycaemia, even if mild, is also associated with increased mortality following myocardial infarction.

Recommendations and Practice Points

  1. Patients admitted to hospital with myocardial infarction who have hyperglycaemia, should be treated to achieve and maintain glucose levels less than 10 mmol/L.
  2. Hypoglycaemia must be avoided. It would be prudent to avoid treatment which lowers the glucose below 5 mmol/L.
  3. Insulin infusion therapy may allow for tighter targets but this requires frequent monitoring and high level staff training.

What Glucose Target Should be Aimed for in Acute Stroke

Recommendations and Practice Points

  1. Patients admitted to hospital with acute thrombotic stroke who have hyperglycaemia, should be treated to achieve and maintain glucose levels less than 10 mmol/L.
  2. Hypoglycaemia must be avoided, and therefore it would be prudent to avoid treatment which lowers the glucose below 5 mmol/L.

What are Appropriate Glucose Targets for Patients in General Hospital Wards?

Recommendations and Practice Points

  1. Most patients in general hospital wards with hyperglycaemia should be treated to achieve and maintain glucose levels less than 10 mmol/L.
  2. Hypoglycaemia must be avoided. It would be prudent to avoid treatment which lowers the glucose below 5 mmol/L.
  3. To achieve tight glucose control safely, frequent glucose monitoring is recommended
Is the hospital diabetes plan complete, holistic?
Is the hospital diabetes plan complete, holistic?

How is Steroid‐Induced Hyperglycaemia Best Managed?

Recommendations and Practice Points

  1. In patients receiving glucocorticoids, undiagnosed diabetes should be excluded. Those free of diabetes should be screened for the development of hyperglycaemia by random blood glucose monitoring performed in the afternoon following morning administration of GC.
  2. Hyperglycaemia is best managed with insulin: basal insulin as isophane type insulin, and rapid acting analogue with meals as required.
  3. In individuals already on insulin the likely need for increased insulin should be recognised. Dose requirements need to be individualised and require daily review.

What is the Optimal Means of Achieving and Maintaining Glycaemic Control in Hospitalised Patients who are not Critically Ill?

Recommendations and Practice Points

  1. Sliding scale insulin should not be used to optimise glucose control in the inpatient general medical or surgical setting.
  2. Oral hypoglycaemic agents or pre‐mixed insulin can be used in certain stable hospitalised patients who are eating regularly. Supplemental insulin should be written up in addition.
  3. Insulin therapy in hospitalised patients should otherwise consist of a basal insulin, prandial and supplemental insulin. **Effective use of basal bolus insulin requires frequent and regular blood glucose monitoring (at least 4 and preferably 6‐8 times daily)

How Should Patients on Insulin Pump Therapy be Managed in Hospital?

Recommendations and Practice Points

  1. In general, CSII should be continued in hospital where the patient can competently and safely self-manage the pump and self‐dosing.
  2. Details of pump therapy should be documented, and supported by the endocrine team
  3. CSII may be continued for short operative procedures if those responsible for the patient’s intraoperative care are comfortable with its use.

 

What is the Role of a Specialist Inpatient Diabetes Team?

Consultant Service.

The traditional hospital model of care, whereby specialised diabetes services are invited, at the discretion of the admitting team, to assist with specific patients’ diabetes management.

There is no evidence that improving this model has resulted in any substantial benefits. Anecdotal evidence suggests that this is akin to “shutting the gate once the horse has bolted”.

Systematic Hospital‐wide Diabetes Programme

These programmes aim to improve the identification of patients with diabetes and to enhance the diabetes management skills of all staff, by education and implementation of diabetes management and prescription guidelines. The responsibility of managing the patient’s diabetes remains with the admitting team.

The evidence supporting such an institution‐wide approach in improving diabetes‐related outcomes is limited to one comparative study162 which demonstrated a reduction in length of stay of 1.8 days for patients with primary diabetes following the intervention.

Specialist Diabetes Inpatient Management Team

This involves a multidisciplinary team approach, with the role of the Inpatient Diabetes Management Team varying from an advisory function to active management of the patient’s diabetes, for all patients with diabetes and usually commences at the time of the patient’s admission.

Several comparative trials (4‐9) have shown reductions in ALOS of 0.26‐5.6 days following intervention by an inpatient diabetes management team, primarily involving a specialist diabetes nurse (some with prescribing capabilities).

# Diabetes inpatient specialist nurse service: Mean excess bed days for diabetes admissions reduced from 1.9 days to 1.2 days after introduction of the service.

# Diabetes Specialist Nurse with prescribing rights: Reduction in medication errors from median 6 to 4 (p<0.01); Reduction in Length Of Stay from median from 9 to 7 days (p<0.05)

#Endocrinologist, diabetes nurse specialist, junior doctor: Reduction in average Length Of Stay for all patients with diabetes from 9.39 to 3.76 days.

role-of-health-care-professionals-in-hospitla
Click to enlarge

*****Want to get out of hospital asap – ask to see a member of the diabetes inpatient management team*****

For more detail in this document go HERE

How has your experience of hospital admissions effected the way you manage your diabetes at home? Or during subsequent hospital admissions?

Kind Regards,

David

Diabetes Educator @ Diabetes Counselling Online

 

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